Program Patient Advocacy 29th May 2018

Afternoon program for Patient organisations only

Location: De Wertheim Room, C1-214, AMC Hospital

Preliminary time schedule: 

14.00 - 14.30 Welcome
President ISSVA, Laurence M Boon, MD, PhD

14:05 Meet and greet: Introduce your organization|
Guided by Maria Jongma and Caroline van den Bosch, Hevas , The Netherlands

14:45 The role of Patient Advocacy Organizations in the USA as educators
Dr. Linda Rozell-Shannon, Vascular Birthmark Foundation, USA

15:15 European Reference Network and role Patient Organizations
Matt Boltz-Johnson MA, EURORDIS/Caroline van den Bosch, Hevas

15:45  Break

16.00 Discussion guided by MattBoltz-Johnson

16.30 Shared decision making
Sophie E.R. Horbach MD, AMC, The Netherlands

17.00 end of the program in AMC

18.00 Welcome Reception (at the Muziek gebouw aan ’t IJ)