• Tuesday 29 May 2018
  • 18:00
    Welcome Reception

    at the Muziekgebouw aan ’t IJ
  • Wednesday 30 May 2018
  • 08:00
    Opening remarks

  • Scientific Session 1: Updates in Vascular Anomalies, Bench and Bedside

    Moderators: Ilona Frieden & Steven Fishman
    • 08:15
      O001 Patient-reported outcomes of bleomycin sclerotherapy for low flow vascular malformations and predictors of improvement.

      Sophie E.R. Horbach, Joost S. van de Ven, Pythia T. Nieuwkerk, Phyllis I. Spuls, Chantal M.A.M. van der Horst and Jim A. Reekers
    • 08:24
      O002 Efficacy and Safety of Pre-Operative Glue Embolization in Treatment of Head and Neck Venous Malformations

      Jonathan Perkins
    • 08:33
      O003 Embryonic Stem Cell-like Subpopulations in Venous Malformation

      Elysia Tan, Sam Siljee, Helen Brasch, Jennifer de Jongh, Susana Enriquez, Swee Tan and Tinte Itinteang
    • 08:42
      O004 CD133+ cells isolated from venous malformation recapitulate the clinical phenotype in a mouse mode

      Peter Grzesik, Michael Schonning, Seung Koh, Ravi Sun, Andrew K. Edwards, Alison Kitajewski, Gresham T. Richter, Carrie J. Shawber and June Wu
    • 08:51
      O005 Retrospective Study of Hematologic Complications in Patients with Localized Intravascular Coagulopathy Undergoing Sclerotherapy

      Kiersten Ricci, Adrienne Hammill, Carol Chute, Paula Mobberley-Schuman, Roshni Dasgupta and Manish Patel
    • 09:00
      O006 Venous malformations and blood coagulation in children

      Johanna Aronniemi, Katariina A. Mattila, Anne Mäkipernaa, Päivi Salminen, anne Pitkäranta, Johanna Pekkola and Riitta Lassila
    • 09:08
      O007 Effect of Sirolimus on Coagulopathy of Slow-flow Vascular Malformations

      Bethany Verkamp, Joana Mack, Gresham Richter, Kelly Stewart and Shelley Crary
    • 09:18
      O008 Efficacy and Safety of Sirolimus in Vascular Malformations Refractory to Standard Care: Preliminary Results of a Phase III Clinical Trial VASE

      Emmanuel Seront, Jennifer Hammer, An Van Damme, Anne Dompmartin, Marie Antoinette Sevestre, Jochen Rössler, Annouk Bisdorff Bresson, Isabelle Quere, Sandra Schmitz, Philippe Clapuyt, Frank Hammer, Catherine Legrand, Miikka Vikkula and Laurence Boon
    • 09:27
      O009 ABL kinase inhibitor Ponatinib combined with rapamycin causes regression of murine Venous Malformation

      Xian Li, Yuqi Cai, Jillian Goines, Patricia Pastura, Paula Mobberley-Schuman, Megan Metcalf, Adrienne Hammill, Denise Adams, Tim LeCras and Elisa Boscolo
    • 09:36
      O010 Initial Experience of Intravascular Sclerotherapy with C-arm Scan under the Guidance of Computer Navigation for Low-flow Vascular Malformations in the Complicated Anatomic Regions of Head and Neck: Report on 8 Procedures

      Hao Gu, Hui Chen, Zimin Zhang, Yunbo Jin, Xi Yang, Li Hu, Yongying Wang and Lin Xiaoxi
    • 09:45
      O011 Sclerotherapy For Intramuscular Vascular Malformations: A Single Center Experience

      Federico Scorletti, Manish Patel, Adrienne Hammill, Kiersten Ricci, Charles Myers and Roshni Dasgupta
    • 09:54
      O012 Venous Malformations are Proliferative: Clinical Implications

      Michael Schonning, Ajit Muley, Seung Koh, Peter Grzesik, Carrie J. Shawber and June Wu
    • 10:03
      O013 The European Reference Network (ERN) for rare vascular diseases (VASCERN): VASCA-working group - towards better management of vascular anomaly patients

      Miikka Vikkula, Leo Schultze Kool, Alan Irvine, Päivi Salminen, Nader Ghaffarpour, Andrea Diociaiuti, Jochen Rössler, C.T. van den Bosch, Eulalia Baselga, Anne Dompmartin and Laurence Boon
    • 10:12
      O014 Outcome measurement instruments for peripheral vascular malformations (OVAMA project)

      Amber P. Rongen, Sophie E.R. Horbach, Roy G. Elbers, Chantal M.A.M. van der Horst, Cecilia A.C. Prinsen, Phyllis I. Spuls and OVAMA consensus group
  • 10:20
    Coffee Break
  • Summary Advanced Specialty Sessions
    • 10:45
      Interventional Radiology
    • 10:56
      Surgery
    • 11:07
      Pathology
    • 11:18
      Medical/Genetics
  • 11:30
    Keynote: Lessons learned from our patients: Questions, Investigation, Solutions

    Steven FIshman, Boston Children’s Hospital, Boston, USA
  • 12:15
    Lunch & Poster presentations P001-P058; P145-P156; & P191-219
  • Difficult Cases 1

    Moderators: Alejandro Berenstein & Julie Prendiville
    • 13:45
      O015 Fœtal pulmonary and cerebral arterio-venous malformations as presenting signs of RASA-1 CM-AVM syndrome

      Julie Powell, Aspasia Karalis, Sandrine Essouri, Denis Bérubé and Josee Dubois
    • 13:56
      O016 Cerebral Proliferative Angiopathy associated with Multiple Capillary Malformations : A new Rasopathy ?

      Anne Dompmartin
  • Scientific Session 2: Vascular Malformations 1

    Moderators: Douglas Marchuk & Annouk Bisdorff-Bresson
    • 14:11
      O017 Wall shear stress in the feeding artery of a superficial arteriovenous malformation is an early and reliable marker of progression.

      Imane El Sanharawi, Didier Salvan, Gabrielle Mangin Mangin, Adrien Cogo, Stephanie Lenck, Olivier Baillart, Nathalie Kubis, Annouk Bisdorff Bresson and Philippe Bonnin
    • 14:20
      O018 The use of Bleomycin and a Thrombin –Gelatin Hemostatic Matrix in the Treatment of Recurrent or Residual High Flow Arteriovenous Malformations of the Head and Neck

      Alejandro Berenstein
    • 14:29
      O019 Efficacy of an AVM Classification System that Directs Endovascular Therapies Accurately

      Wayne Yakes
    • 14:38
      O020 Extracranial artreriovenous malformations: a classification based on clinical, surgical and endovascular features.

      Giacomo Colletti, Margherita Dessy, Laura Moneghini, Anna Ierardi, Raul Mattassi and Federico Biglioli
    • 14:47
      O021 Germline Loss-of-Function Mutations in EPHB4 cause a Second Form of Capillary Malformation–Arteriovenous Malformation (CM-AVM2) deregulating RAS-MAPK signaling

      Nicole Revencu, Mustapha Amyere, Raphaël Helaers, Eleonore Pairet, Eulalia Baselga, Maria Cordisco, Wendy Chung, Josee Dubois, Jean-Philippe Lacour, Loreto Martorell, Juliette Mazereeuw-Hautier, Reed E. Pyeritz
    • 14:56
      O022 Expanding the phenotypic spectrum of cases with an EPHB4 mutation

      Whitney Wooderchak-Donahue, Gulsen Akay Tayfun, Jamie McDonald, Kevin Whitehead, David Stevenson and Pinar Bayrak-Toydemir
    • 15:03
      O023 EPH-B4 Regulates Venous Adaptive Remodeling in Arteriovenous Fistulas via an AKT1-Dependent Mechanism

      Naiem Nassiri and Alan Dardik
    • 15:10
      O024 Genetic Testing in the Diagnostic Workup of Vascular Anomalies

      Miikka Vikkula, Nicole Revencu, Anne Dompmartin, Elsa Khoury, Antonella Mendola, Nisha Limaye, Raphaël Helaers, Elodie Fastré, Matthieu Schlögel, Nassim Homayun, Pascal Brouillard and Laurence Boon
    • 15:19
      O025 Clinical Utility of a NGS panel in the Diagnosis of Vascular Malformations Syndromes

      Whitney Wooderchak-Donahue, Gulsen Akay-Tayfun, Peter Johnson, Jamie McDonald, J. Fredrik Grimmer, Gresham Richter, Marcie Steeves, Angela Lin, David Stevenson and Pinar Bayrak-Toydemir
    • 15:26
      O026 Molecular Diagnosis of Mosaic Skin Development Disorders using Next Generation Sequencing.

      Virginie Carmignac, Paul Kuentz, Arthur Sorlin, Martin Chevarin, Thibaud Jouan, Charlotte Poë, Yannis Duffourd, Frédéric Tran Mau Them, Christel Thauvin, Christophe Philippe, Jean-Baptiste Rivière, Laurence Faivre, Pierre Vabres and Investigators MUSTARD
    • 15:33
      O027 ISSVA Classification of Vascular Anomalies. 2018 Update Proposal.

      Michel Wassef, Eulalia Baselga, Gulraiz Chaudry, Maria Garzon, Dov Goldenberg, Juan-Carlos Lopez-Gutierrez, David Lord, Tony Penington, Julie Prendiville, June Wu and Francine Blei
  • 15:45
    Coffee Break
  • 16:00
    General Assembly
  • 17:30
    Social Event: Boat Tour